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    Last Updated: 01/09/2026

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    MediFind found 9 doctor with experience in Porphyria Cutanea Tarda near Kansas City, MO. Of these, 9 are Experienced.

    Location
    LocationClose
    9 providers found
      Experienced in Porphyria Cutanea Tarda
      Hematology Oncology | Hematology | Oncology
      Experienced in Porphyria Cutanea Tarda
      Hematology Oncology | Hematology | Oncology

      University Of Kansas Hospital Authority

      2650 Shawnee Mission Pkwy, 
      Westwood, KS 
       (5.0 miles away)
      Languages Spoken:
      English, Georgian, Hindi, Kannada, Marathi, Telugu
      Accepting New Patients
      Offers Telehealth

      Ravindra Chuda is a Hematologist Oncology specialist and a Hematologist in Westwood, Kansas. Dr. Chuda is rated as an Experienced provider by MediFind in the treatment of Porphyria Cutanea Tarda. His top areas of expertise are Chronic Lymphocytic Leukemia (CLL), Pleuropulmonary Blastoma, Lung Cancer, and Muscle Invasive Bladder Cancer. Dr. Chuda is currently accepting new patients.

      Experienced in Porphyria Cutanea Tarda
      Family Medicine
      Experienced in Porphyria Cutanea Tarda
      Family Medicine
      5501 Nw 62nd Ter, Suite 100, 
      Kansas City, MO 
       (8.2 miles away)
      Languages Spoken:
      English, Arabic, French
      Accepting New Patients

      Grace Stephan is a primary care provider, practicing in Family Medicine in Kansas City, Missouri. Dr. Stephan is rated as an Experienced provider by MediFind in the treatment of Porphyria Cutanea Tarda. Her top areas of expertise are PMM2-Congenital Disorder of Glycosylation, Phosphomannoisomerase Deficiency, Sialic Acid Storage Disease, and Sialuria. Dr. Stephan is currently accepting new patients.

      Experienced in Porphyria Cutanea Tarda
      Internal Medicine
      Experienced in Porphyria Cutanea Tarda
      Internal Medicine
      373 W 101st Ter, 
      Kansas City, MO 
       (10.8 miles away)
      Languages Spoken:
      English

      Steven Gruenebaum is a primary care provider, practicing in Internal Medicine in Kansas City, Missouri. Dr. Gruenebaum is rated as an Experienced provider by MediFind in the treatment of Porphyria Cutanea Tarda. His top areas of expertise are Obesity, Porphyria Cutanea Tarda, Hypertension, and Familial Hypertension.

      Learn about our expert tiers
      Experienced in Porphyria Cutanea Tarda
      Family Medicine
      Experienced in Porphyria Cutanea Tarda
      Family Medicine

      Saint Lukes Physician Group Inc

      5844 Nw Barry Rd, 110 St Lukes Medical Barry, 
      Kansas City, MO 
       (10.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jeffrey Parker is a primary care provider, practicing in Family Medicine in Kansas City, Missouri. Dr. Parker is rated as an Experienced provider by MediFind in the treatment of Porphyria Cutanea Tarda. His top areas of expertise are Type 1 Diabetes (T1D), Hypertension, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Parker is currently accepting new patients.

      Experienced in Porphyria Cutanea Tarda
      Hematology Oncology | Hematology | Oncology
      Experienced in Porphyria Cutanea Tarda
      Hematology Oncology | Hematology | Oncology

      University Of Kansas Hospital Authority

      8700 N Green Hiils Rd, 
      Kansas City, MO 
       (11.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jeremy Flanagan is a Hematologist Oncology specialist and a Hematologist in Kansas City, Missouri. Dr. Flanagan is rated as an Experienced provider by MediFind in the treatment of Porphyria Cutanea Tarda. His top areas of expertise are Small Cell Lung Cancer (SCLC), Lung Adenocarcinoma, Familial Colorectal Cancer, and Colorectal Cancer. Dr. Flanagan is currently accepting new patients.

      Experienced in Porphyria Cutanea Tarda
      Hematology Oncology | Hematology | Oncology
      Experienced in Porphyria Cutanea Tarda
      Hematology Oncology | Hematology | Oncology

      University Of Kansas Hospital Authority

      8700 N Green Hiils Rd, 
      Kansas City, MO 
       (11.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Marci Allen is a Hematologist Oncology specialist and a Hematologist in Kansas City, Missouri. Dr. Allen is rated as an Experienced provider by MediFind in the treatment of Porphyria Cutanea Tarda. Her top areas of expertise are Colorectal Cancer, Familial Colorectal Cancer, Small Cell Lung Cancer (SCLC), and Large-Cell Immunoblastic Lymphoma. Dr. Allen is currently accepting new patients.

      Experienced in Porphyria Cutanea Tarda
      Dermatology
      Experienced in Porphyria Cutanea Tarda
      Dermatology

      Kansas City Skin And Cancer Center LLC

      8656 N Ambassador Dr, 
      Kansas City, MO 
       (11.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Emily Ochoa is a Dermatologist in Kansas City, Missouri. Dr. Ochoa is rated as an Experienced provider by MediFind in the treatment of Porphyria Cutanea Tarda. Her top areas of expertise are Actinic Keratosis, Melanoma, Alopecia Areata, and Autosomal Recessive Hypotrichosis. Dr. Ochoa is currently accepting new patients.

      Experienced in Porphyria Cutanea Tarda
      Hematology Oncology | Hematology | Oncology
      Experienced in Porphyria Cutanea Tarda
      Hematology Oncology | Hematology | Oncology

      University Of Kansas Hospital Authority

      12200 W 110th St, 
      Overland Park, KS 
       (13.2 miles away)
      Languages Spoken:
      English, French, Spanish
      Accepting New Patients
      Offers Telehealth

      Marc Hoffmann is a Hematologist Oncology specialist and a Hematologist in Overland Park, Kansas. Dr. Hoffmann is rated as an Experienced provider by MediFind in the treatment of Porphyria Cutanea Tarda. His top areas of expertise are Non-Hodgkin Lymphoma, B-Cell Lymphoma, Mantle Cell Lymphoma (MCL), Small Lymphocytic Lymphoma (SLL), and Bone Marrow Aspiration. Dr. Hoffmann is currently accepting new patients.

      Experienced in Porphyria Cutanea Tarda
      Hematology Oncology | Hematology | Oncology
      Experienced in Porphyria Cutanea Tarda
      Hematology Oncology | Hematology | Oncology

      University Of Kansas Hospital Authority

      2525 Glenn Hendren Dr, 
      Liberty, MO 
       (14.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Amy Braden is a Hematologist Oncology specialist and a Hematologist in Liberty, Missouri. Dr. Braden is rated as an Experienced provider by MediFind in the treatment of Porphyria Cutanea Tarda. Her top areas of expertise are Familial Colorectal Cancer, Inflammatory Breast Cancer, Angiosarcoma, and Anemia. Dr. Braden is currently accepting new patients.

      Showing 1-9 of 9

      Last Updated: 01/09/2026

      What is the definition of Porphyria Cutanea Tarda?

      Porphyria cutanea tarda (PCT) is a form of porphyria that primarily affects the skin. People affected by this condition generally experience "photosensitivity," which causes painful, blistering lesions to develop on sun-exposed areas of the skin (i.e. the hands and face). Skin in these areas may also be particularly fragile with blistering and/or peeling after minor trauma. In some cases, increased hair growth as well as darkening and thickening of the affected skin may occur. Liver abnormalities may develop in some people with the condition and PCT, in general, is associated with an increased risk of liver cirrhosis and liver cancer. In most cases, PCT is a complex or multifactorial condition that is likely associated with the effects of multiple genes in combination with lifestyle and environmental factors. For example, factors such as excess iron, alcohol, estrogens, smoking, chronic hepatitis C, HIV and genetic changes in the HFE gene (which is associated with the disease hemochromatosis) can all contribute to the development of PCT. Less commonly, PCT can run in families (called familial PCT). Familial PCT is caused by changes in the UROD gene and is inherited in an autosomal dominant manner.

      When should I see a Porphyria Cutanea Tarda doctor near Kansas City, MO?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Porphyria Cutanea Tarda doctor near Kansas City, MO?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Porphyria Cutanea Tarda doctors near Kansas City, MO?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Porphyria Cutanea Tarda doctors near Kansas City, MO?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Porphyria Cutanea Tarda doctor near Kansas City, MO?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porphyria Cutanea Tarda doctor search results page. 

      Why is it important to get a second opinion from a different Porphyria Cutanea Tarda doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Porphyria Cutanea Tarda doctor near Kansas City, MO?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Porphyria Cutanea Tarda doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Porphyria Cutanea Tarda doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Porphyria Cutanea Tarda doctors near Kansas City, MO?

      Look for the filter feature on the left side of the Porphyria Cutanea Tarda doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Porphyria Cutanea Tarda doctor that offers video calls?

      Look for the filter feature on the left-side of the Porphyria Cutanea Tarda doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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